Posts Tagged ‘research’

Trip to Toronto!

Written by on February 2nd, 2016 –
Me in front of the Toronto sign from the 2016 PanAm & ParaPanAm Games.

Me in front of the Toronto sign from the 2016 PanAm & ParaPanAm Games.

On January 18th, I flew off to Toronto to serve my 2nd term as a Community Representative for the Canadian MS Society. This year, I was assigned to the Clinical and Population Health (CPH) Committee, which deals with research related to mental health/quality of life research in relation to MS patients. It was really encouraging to know that researchers and clinicians are invested in finding ways of treating the whole patient and helping to address the unique mental and emotional challenges MS patients face living with this life-altering disease. (more…)

On A Mission

Written by on February 17th, 2015 –

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In late January, I flew out to Toronto to meet with the Personnel Awards  committee at the MS Society of Canada office. The Personnel Awards committee is responsible for reviewing research applications for studentships – Master’s, Doctoral and Postdoctoral fellowship applications that are involved in both biomedical research and clinical and population health research. This committee was comprised of 11 researchers and clinicians, (one of whom was the chair) two MS Society grants staff, an MS Society intern, the Vice President of Research, (who  herself has a PhD) and four community Reps, which included me. In all, the board room was filled to capacity with 19 people working as a team.

All of us spent 6 weeks prior to the meeting working hard on our reviews. I personally reviewed 24 grant applications. I spent countless hours learning new words (Thank goodness for Google!) and trying very hard to understand a few applications that were exceptionally challenging. There were times where I felt like I was stretching far beyond my comfort zone, but I would temper that with the knowledge that I was doing this work to the absolute best of my ability.

The review process was eye opening for me. I came away with a deeper understanding of just how complex a process it really is.

The Canadian MS Society’s mission statement reads:

“To be a leader in finding a cure for multiple sclerosis and enabling people affected by MS to enhance their quality of life.”

And these are the values* I saw in action during the review process: (more…)

Exciting News!

Written by on December 4th, 2014 –

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So…I have been keeping something very exciting under wraps for just over a month now, but I can finally tell you about it. In September, I applied to be a Community Representative for the Canadian MS Society and I received an email indicating that I’d been accepted as the representative for British Columbia at the end of October.

 A Community Representative is someone who is affected by MS-either they live with MS themselves or have a family member who does. In my case, I lived with an MS diagnosis for 5 years before being re-diagnosed with Neuromyelitis Optica (NMO). I have a number of close friends who have MS and I also have members of my family who live with or have lived with MS as well, so my ties to the MS community run deep.
Community Representative assess MS research grant applications to ensure ease of comprehension and relevance to MS and offer valuable insight throughout the review process to ensure that research dollars are spent wisely on projects that will have a significant impact on those affected by MS. Each Community Representative spends significant volunteer hours reviewing, evaluating and recommending studies for funding by the Canadian MS Society.
I have been assigned to the Personnel Awards Review Committee, which is responsible for reviewing Masters, Doctoral and fellowship applications that are involved in both biomedical research and clinical and population health research. This committee is made up of one chair person, ten scientific reviewers (Doctors) and four community representatives.
Over the next month, I will be working hard on the review process and then in mid-January, I will be flying out to Toronto for a meeting to go over in detail each application our committee has reviewed.

I am very honoured to have been selected to participate in this process and to have the opportunity to have an impact on the future of MS research in this way. I am really looking forward to working with my committee (I think it will be an excellent fit!) and am excited to learn new things.

The Canadian MS Society will be posting profiles of each of the Community Representatives on their website soon. If you’d like to learn more about the Canadian MS Society’s research program, you can do so by clicking here.

New Research

Written by on January 12th, 2012 –

I am Amanda and this is my blog 🙂

I was recently in the news (no big deal :P), but really I am just using being in this story as an excuse to share some very important info. This story was not about me-well any more then it is about any of you living with MS. If you were diagnosed early in life-especially at Sick Kids-you might want to read this, or maybe you saw the news report already. (more…)