Posts Tagged ‘MSMystory’

Sharing Your Story

Written by on September 8th, 2015 – 1 Comment

As long as I can remember I have been a storyteller. I remember in elementary school that I loved anytime we were allowed to write stories. One of my favourite classes in high school was Writer’s Craft. Storytelling is why I got interested in theatre and am now majoring in Drama Studies and even Sociology because I believe that through understanding each other’s stories, we can learn more about our society . And while my love for stories started in fiction, I’ve learned the power of hearing an individual’s personal story through non-fiction, microsociology and understanding the importance of diversity.

As well, I’ve learned through telling my own story. As a storyteller, I’ve been able to work through my diagnosis, treatment and continuous battles of having MS by knowing my story. And by shaping my narrative. I could have easily turned my life into one of self-pity when I was diagnosed. But I didn’t think that was a fun story. So I turned my diagnosis into a story of empowerment, advocacy and community.

Getting involved with the MS Society has given me a number of occasions to share my story of my diagnosis besides contributing to this blog.


The #MSMyStory video series was an amazing opportunity where I got to contribute to a youth-centric campaign where young people, like myself, that live with MS and have family that live with MS talk about the ups and downs of MS. It was incredible being part of this because I got to hear the stories of so many other young people. I got to see that I am not alone in this journey. While everybody’s MS is different, the narratives can be very similar.

I had the incredible opportunity to do an interview, complètement en français, with Radio-Canada. I’ve been learning French for sometime now and this was a personal point of pride for myself. While I didn’t have perfect French, I felt confident enough in my French, and comfortable enough sharing my story that it came easy to speak on air about living with MS. Click the logo above to listen to the story – click on “Vivre avec la sclérose en plaques” to hear my interview and that of Yves Savoie, president and CEO of the MS Society.

The coolest way I’ve been able to share my story (and really the coolest thing I’ve ever done) was being a speaker at TEDxYorkU this year! I’ve a huge fan of TEDTalks and being on the TED stage, speaking about living with MS and learning from vulnerability was incredible!

While sharing my story has helped me work through all the feelings and experiences I’ve had associated with living with MS, the most amazing part has been hearing the feedback, having people share their own stories and having people saying that they’re taking something away from my storytelling.

Storytelling creates a community. And having a community can making living with MS a little easier. Now that community can be a small group of friends and family, or the entire world.