Posts Tagged ‘diagnosis’

The Grey Zone

Written by on April 4th, 2017 – 8 Comments

 

In the summer of 2014, I was a lawyer, wife and Mom to a beautiful 4 year old girl and adorable newborn son. Life was seemingly perfect…although, I was way too caught up in the details of life to appreciate it back then.

During my parental leave, I agreed to return to work to deal with an intensely stressful situation that lasted much longer than anticipated. ‎When I re-commenced my parental leave, I got sick multiple times. When I say sick, I mean big, ugly flu bugs. One after another. In fact, five times in a month. That’s when the numbness started. It culminated one night in September, when I woke up to discover the right side of my body stopped working. It was two in the morning and I certainly didn’t want to inconvenience anyone, so I hopped into my car and somehow drove myself to the hospital. My mind was racing. Was I having a stroke? Was it cancer? Was it ALS? According to Doctor Google, it was all of the above and possibly rabies.

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The Story Of A Rare Bird

Written by on January 15th, 2013 – 12 Comments

Around this time last year, my vision got blurry like someone had smeared Vaseline over my eyes and it felt like my right eye was being pulled out of the socket. The pain was somewhat like the bad migraines I have frequently and also similar to a sinus infection. I went through four episodes of this between February and July. Despite numerous attempts to get to the bottom of why this was happening, for some reason the obvious answer kept being overlooked. Finally in late July, I happened to mention it to my MS Specialist. She immediately referred me to a neuro ophthalmologist who ran a ton of tests and informed me that my problem was optic neuritis. In light of my medical history, he wanted to run an additional test, for NMO-Neuromyelitis Optica, a disease which very closely resembles MS.

I’d had an NMO test 5 years ago when I was in the process of being diagnosed with MS and it had come back negative. While I was waiting on the results of this latest test, I learned through the MS Society that I had the opportunity to learn more about NMO by attending a patient information day out at UBC. I signed up and went.

Two weeks later, my NMO test results were in. I’d tested negative again. You would think that would be the end of it, but no. The problem is that the NMO test is not foolproof. Forty percent of people who get a negative result test as a false negative. You can test negative and still have NMO. Fortunately, thanks to attending the NMO patient information day, I was able to arrange to get a consult with an NMO expert, one of two in all of Canada.

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