Negative attitude anyone?!

Written by on July 21st, 2015 – 4 Comments

Random topic I know … but an important question I believe.

Do you often find that ANY diagnosed illness or condition CAN lead to an excuse to be negative??

Do I agree with this? To a point – yes.  I think any diagnosis is shocking and everyone deals differently. Some hit rock bottom before picking up the pieces, some stay at rock bottom, some never get that low – it varies, I realize that.  I’m not telling anyone how to act or react …

question markMy question is this;

When does having a negative attitude get to be too much? When are you allowed to slap someone silly and say “relax, it could be worse” or “stop being a downer to everyone else”.  How long do you let someone play their pity role?

I have always believed that MS (or any illness) does NOT allow you to be the “negative nancy” of the group …

Would love someone’s input on how to approach people who are negative with their illness … and I don’t mean “down days” .. I mean pity days ALL THE TIME.  Who go on and on about how awful this illness is the worst – it’s fine if they choose to poison their own life with that attitude,  but what about when they start to poison other people (with or without MS) and put bad thoughts in their head about this illness?

Thoughts?

 

$100,000 Follow the Leader scholarship awarded to exemplary Toronto student

Written by on July 14th, 2015 –

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The Multiple Sclerosis Society of Canada is proud to announce that Toronto student Allie Sherwin has been awarded a Follow the Leader scholarship, which is made possible by the support of the KRG Children’s Charitable Foundation. Sherwin, whose mother has primary progressive multiple sclerosis, will receive $100,000 towards her expenses throughout her four year undergraduate degree – a degree she hopes will lead to a career in MS research.

“It’s such an amazing opportunity,” says Sherwin, who is set to begin her studies at Western University in the fall. “It’s been hard to watch my mother’s health slowly get worse. This scholarship will help me make a difference in the lives of people who are dealing with the same thing.” (more…)

Congratulations on WEGO Health Activist Awards win!

Written by on July 7th, 2015 –

CertificateCongratulations again to the someonelikeme.ca and commemoi.ca bloggers who won the WEGO Health Activist Awards for best team performance in March 2015. We received a prize pack with an iPod and would like to award it to one of our very deserving bloggers. For the next 5 months, for every blog posted on someonelikeme.ca or commemoi.ca, the blogger will get their name entered into a draw to win the prize. Stay tuned in December to find out who the lucky winner is!

The Gift in MS

Written by on June 23rd, 2015 –

By: Andrea, guest blogger

grat·i·tude
/ˈɡradəˌt(y)o͞od/
noun
      the quality or feeling of being grateful or thankful:

Gift.  Normally we think of happiness and gratitude when we think of receiving a gift.   What I have learned, is that sometimes those reactions can be delayed.  But when you learn to accept a gift with an open mind, gratitude eventually ensues, and your heart will begin to smile.

View More: http://lyndsayessonphotography.pass.us/andrearhI am a newcomer in the world of MS.  In fact, I basically still have a visitor’s pass, as I wait here in Limboland for the gates of MS to open.   I have one clinical symptom, optic neuritis, and a stable brain MRI that shows two lesions.  My major symptoms, other than optic neuritis, are MS fatigue, and numbness in my legs and feet.  I experienced my first symptom of optic neuritis in July of 2013.  As terrifying as it was, I remember feeling relieved.  I had been seeing different doctors for years, feeling frustrated as I looked for answers to explain why I was feeling the way I was, and then finally, they were beginning to pay attention now that I had optic neuritis.  Fast-forward two years later, and here I am still waiting, but now with patience and acceptance.

I have been lucky to have an amazing support system that surrounds me.  One woman, in particular, changed my path early on in this journey.  She asked me, “What is the gift in MS for you?”  At first, my reaction was ‘What is she thinking…this is such an ignorant question’.  But as she patiently waited for my response, my thinking quickly changed, and I realized, the gift in all of this, is that the possibility of MS has given me reason to put myself first.  This was something that I had never done in the past.  And ultimately, it has given me incredible strength.

From that day forward, I always try my best to remember what MS has given me: strength, focus, awareness of myself, and a passion to live life as it is now.  Of course, there have been many days when I have felt anger and resentful to what I have been handed, but with the ability to change my thinking and remember the positives that MS is giving me, that anger and resentment quickly fades away.  And in return, I grow stronger.

Pounding the Pavement…Again

Written by on June 16th, 2015 –

andreaBy the time you read this I will have completed my first 5Km run in years.  Actually the picture I included was from my last 5Km and that was in 2011.  I trained briefly about a year later but of course had to stop due to relapses.

So my relationship with running has been on again off again since my teenage years, of course relating to relapses.  As a young teenager I did quite a bit of long distance running and then was told I would have to stop due to a relapse.  Of course I don’t listen very well, so I waited until I recovered from the relapse, and started running again.  I’ve done this more times then I can count and each time it gets a bit harder.

This time I decided to run in a fun run, in support of our local Children’s Hospital.  I have a friend with preemies in the hospital so this seems like a great way to support her and get back to something I really love! (more…)

Well I did it…reached my 10 year goal!

Written by on June 9th, 2015 – 1 Comment

Hope everyone has been having a great summer. I had some exciting news that I wanted to share with everyone and provide some motivation to those just starting out their fundraising efforts :).

EVERY PENNY REALLY DOES HELP!!!

DSC03904 (2)I was diagnosed 11 years ago, I was unable to participate in the MS walk my first year due to the stress and side effects I was going through with MS.  It was also only a few weeks away and I was no where near ready for that.

The following year, so 10 years ago, we participated in the MS walk here in Saskatoon.  I had secretly (and silently) set a team goal for myself … that in 10 years I wanted to raise $100,000.

Well … you guessed it … this year we raised just over $13,000 … meaning our team hit our goal … I am thrilled beyond thrilled … $104,000 in 10 years … my mind is blown!!!

YOU CAN DO IT .. you can help … every penny counts …

Different Place

Written by on June 2nd, 2015 – 2 Comments

20150522_193547I find myself in a very different place in life these days. I am feeling less like I am just trying to get through just the next second, minute, hour or day. I have long drifted past those first terrifying few years post MS diagnosis. I finally have a solid treatment plan in place and I find I can look at more in my life than simply my next medical crisis. I definitely still have bad days, but I know they won’t last forever. I never thought I would get to that point. I never thought I would get to a point where the future didn’t create an anxious feeling in the pit of my stomach. It’s a liberating feeling. (more…)

World MS Day

Written by on May 27th, 2015 –

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By: Melissa G. from The Travelling MSer

Today is World MS Day. This year, we are asked to share what makes us “stronger than MS”. For me, what makes me feel strong are the people that support me through it everyday. First and foremost, my family, who I would never have gotten through the past few years without. Supporting me through every hospital visit, every doctors appointment, and every bad day. My friends, the ones that stuck around and continued to remember that I am still the person I always was, even though I may do things a bit differently now. Also the new friends that I’ve met because of my MS, who I am so very thankful for. My boyfriend, who makes me feel like it’s okay when I’m not up to doing something we had planned on, and understands no matter what, reminding me that it’s not my fault. These people all make it so I feel like I can get through it even when I’m at my worst, and remind me that I have to fight, even when I feel like I can’t.

For them, I try every day to be #StrongerThanMS

-M

To read more personal stories from Melissa check out her blog at: www.thetravellingmser.wordpress.com

Vancouver ScotiaBank MS Walk 2015

Written by on May 25th, 2015 –

Yesterday was the Vancouver ScotiaBank MS Walk. This year. the walk was held at a new location, at The Plaza of Nations right along False Creek in beautiful downtown Vancouver. This meant that the route ran right along the seawall. It was a gorgeous walk for everyone who participated.

The turn out was fantastic-about 500 people showed up and there was so much to see-teams in costumes…

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Teams with signs…

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Teams whose participants were doing the course their own way…

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Join us May 27th for our annual MS Research Town Hall!

Written by on May 13th, 2015 –

To mark World MS Day, join us on Wednesday, May 27, 2015 from 7:30-8:30pm EST for our annual MS Research Town Hall. This by-phone and live-streamed event will feature prominent MS researchers, including Dr. Mark Freedman, Dr. Helen Genova and Dr. Ruth Ann Marrie, in conversation with the CBC Radio’s Bob McDonald (Quirks and Quarks).

The annual MS Research Town Hall offers listeners across Canada insights and information regarding the latest research being done in the area of multiple sclerosis and how it impacts the future of disease knowledge. Learn more about stem cells and MS and other ground breaking research that brings new hope to people with MS.

Watch our social media accounts to cast your ‘wild card topic’ vote. For more information and to pre-register for the event, visit mssociety.ca/msresearchtownhall.

2015 MS Research Town Hall Flyer FINAL EN