Newly Diagnosed

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This topic contains 7 replies, has 7 voices, and was last updated by  Simmin 10 months, 3 weeks ago.

Viewing 8 posts - 1 through 8 (of 8 total)
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  • May 31, 2016 at 11:11 pm #13907

    CaitQuig
    Participant

    Hey,

    My name’s Cait, I’m 24 and I was diagnosed with relapsing remitting MS about a month ago. I lost my vision in my left eye due to optic nerve swelling (which eventually came back to normal) and that led to a couple MRI’s and then a diagnosis because my brain is lit up with lesions and new ones continue to appear, so here I am. Hi. I’m hoping to make some buddies in this community, so if you have any advice or some sort of encouragement I’d love to hear from ya.

    June 19, 2016 at 8:45 pm #13915

    Casey41
    Participant

    I was also diagnosed in May 2016 with lost of vision in my left eye (still only at about 80%) and leg weakness, body numbness, and recently I started having itching in my arm and the banding that squeezes painfully through my torso. I constantly am crying. I just want my life back. I don’t have encouragement but maybe someone does…

    July 18, 2016 at 6:31 pm #13936

    Simmin
    Participant

    I was diagnosed in September 2015 after bouts of double vision began in March 2012. I would recommend the book The Wahl’s Protocol. And try getting into an MS Clinic where you will have an entire health care team working with you instead of just one doctor. All the best to you!

    July 26, 2016 at 10:38 pm #13951

    Aliciamy
    Participant

    I was diagnosed December 29th 2015,
    Also lost vision in my left eye still not fully back to normal, I have shakes numbness outburst depression anxity leaky gut syndrome and recently have my arms and legs paralyze I am also 24 my names Alicia im scared and I have no words of encouragement just yet except you are not alone in this <3

    July 31, 2016 at 4:43 pm #13953

    jefrank83
    Participant

    Diagnosed April 2016, no treatments yet – looking for doctor recommendations in Calgary, AB – anyone been to and happy with the Calgary MS clinic?

    August 27, 2016 at 12:29 am #13978

    klsa
    Participant

    I am a mother of s 15 year old daughter that was just diagnosed with RRMS a few days ago. It all started this past April when she presented with a first time seizure. The MRI showed a lesion in her temperal lobe and they thought it might be cancer. Sudden, shocking news from a previously healthy teen. She was at Stanford for a couple of weeks. It did not present as cancer and they were ruling out autoimmune and infectious diseases. Her word finding came back and she came home without a diagnosis, other than it being a one time event. We tapered off the steroids and continued the Keppra. Her Dr wanted to repeat the MRI in 6 months, but we wanted 4 months. The MRI showed more lesions which seemed a surprise to the pediatric white matter specialist. He gave us the diagnosis of MS, and we were shocked, once again. Our daughter, Grace, does not want to talk about it and is not telling anyone. She has no problems with balance, strength or other signs. I don’t know if her full schedule and activities will tire or stress her out. I don’t know anyone with MS and sent for information from the MS Society. I’m interested in the causation and treatments. I feel bad for my daughter and experience a lot of guilt. We are switching her care from Stanford to UCSF and it will be easier for us to get to San Francisco. They have a good pediatric MS center. It is nice hearing from others that are going through this.

    September 2, 2016 at 4:47 am #13982

    bigrage
    Participant

    Diagnosed august 2016

    September 2, 2016 at 5:22 pm #13983

    Simmin
    Participant

    Doing some research on LDN – Low Dose Naltrexone

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