Author Archive

Not Done

Written by on June 18th, 2013 – 7 Comments

When I was diagnosed with MS in 2009, I didn’t cry in the doctor’s office. I cried in the hospital parking lot on the phone with my husband. I cried all the way home in the car. I cried at my house and because I was feeling terrible and apparently wanted to feel worse, I went online and cried some more. The internet can be wonderful, but once you start going down that rabbit hole where every link on every page takes you to a darker and scarier place, it can be horrible.

After all that I read, I was sure that I was done. I would never get to do all the things I wanted to do. I was 34 with two small children and I was done.

I don’t remember how or where I came across Aaron’s story, but I remember I was gobsmacked. I knew that band. I had one of their albums. (more…)

Hockey

Written by on May 28th, 2013 – No Comments

It’s been awhile since I’ve written for the blog. This post is about my daughter playing hockey.

We live in a small community in south western Ontario and hockey is a big deal here. Most of the kids who play hockey in this town start when they are three or four. Not only do they start young, but many of them skate all year. They play the season and then participate in power skating and other skill building activities in the off months.

My daughter E decided this year at the ripe old age of eight that she’d like to play hockey. E could skate on figure skates, but hadn’t skated on hockey skates. She had no stick handling skills. We got her equipment and took her out for a few family skates all suited up. She got used to skating on hockey skates pretty quickly, but couldn’t stop. So began her hockey career. (more…)

Metal Head

Written by on January 26th, 2012 – No Comments

My teeth have always been slightly crooked and rotated and that’s always bothered me. I had an orthodontics consultation when I was in my early 30s, but true to form, I didn’t pursue it. A year after I was diagnosed with MS, I decided to get braces and straighten my teeth. Now that I’m averaging a brain MRI about every 6 months, what could be better than a mouth full of metal? (more…)

I Forget…

Written by on January 10th, 2012 – 1 Comment

Not to brag, but I have a good memory.  Not necessarily for practical, every day things (where are my keys??), but for names and faces; for places and directions; for stories, movies and trivia; for events; for information about people, I really do have a very good memory.

If I had been given a choice between physical or cognitive problems when I was first diagnosed, I would have chosen the cognitive ones hands down. I was all about hiding my MS and to me, cognitive problems would be easier to hide. I figured that I would just use my cell phone more to keep track of things and that would be that. (more…)

California

Written by on December 20th, 2011 – No Comments

During my first two relapses I took a pounding. It was one thing on top of another, on top of another, and so on. Unfortunately there was no relief for the symptoms of the first relapse. Medication helped ease some of the discomfort of the second. When the smoke cleared, I was left with a body that I didn’t recognize. For a good eight months or so, it had behaved in a way that I couldn’t predict or control.  When everything settled down, I felt like I did before. Everything worked again, like it did before. However, I was unsure of how to act or what to do. I was walking on eggshells around my own body, afraid to set it off again. (more…)

My Speech: Part 2

Written by on December 15th, 2011 – No Comments

However, as is often the case in life, out of the negative has come some positive. These past few years, I’ve been overwhelmed by the support and kindness of family and close friends. That my husband drags himself out of bed at 6 some mornings to help me with my injection before I leave for work, or that my friends work so hard to raise money for the MS Walk on my behalf, tells me that I am loved. I am forever grateful for this.

I’ve also learned to live as we all should, by enjoying today. When I was first diagnosed, the only way I could get out of bed in the morning was to say to myself, “Today, it’s okay”. Two and a half years later, I have taken that a step further. (more…)

My Speech: Part 1

Written by on December 13th, 2011 – No Comments

I recently had the honour of speaking at the endMS Gala in Toronto. Here is my speech.

I work as an elementary school teacher. For a few years my school participated in the MS Read-A-Thon fundraiser.  The Read-A-Thon campaign starts with a kick-off assembly. Volunteers from the MS Society come and explain the disease in a simple way to the students. During one assembly, I remember thinking, “That is a terrible disease.” That there is nothing wrong with your foot, but you can’t move it because your nerves can’t properly relay the message from your brain to your foot; that is terrible. Each year during the event itself, I dutifully encouraged my students to read, felt sad for people with MS and, as we all do with things that don’t affect us directly or indirectly, I put it out of my mind and went on with my life.  Fast forward two or three years and I was in the neurologist’s office. (more…)