Author Archive

Student Leadership and Multiple Sclerosis

Written by on November 12th, 2013 – 4 Comments

A big part of who I am is the fact that I am a university student. Especially since I live on residence, work three different positions on campus and I’m a full-time student, my university career is my entire life. I even want to work in higher education when I’m older.

However, at the beginning of my journey of living with MS, I didn’t know if that was in the cards for me. I knew I had to avoid stress, but I live off being busy. I call myself a professional busy bee. So how was I supposed to avoid stress, while maintaining the lifestyle I loved and thrived off of?

My philosophy on student leadership needed to be change. Now it is one that has been touted by many: You’re a person first, a student second, and a leader after. I can only be a student leader, and involved in so many things if I’m a student, and I’m putting my academics first. So that needs to be the focus after I’m making sure to take care of myself.

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The Online MS Community and #CyberCompassion

Written by on September 3rd, 2013 –

Today is #CyberCompassion day! It’s no secret that in today’s day and age, social media and the internet are a central focus for many people, including youth like myself. As I described in my first post, I’m ALWAYS connected to social media, mostly Twitter! I love the way I can be connected to my favourite celebrities (i.e. the entire cast of Glee, the entire The Chew panel and maybe even a few Kardashians…), but also I think it’s changed the way we receive news from all over the world. The second something happens in the world, a tweet can be sent out and millions of people will know instantly. (more…)

4 Things I Wish I Knew When I Was First Diagnosed

Written by on August 6th, 2013 – 3 Comments

As I have said before, I was diagnosed just last year, on July 7 2012. Having just passed my one-year anniversary, I’ve been doing a lot of reflections on the past year, my journey as someone who lives with MS, and how I’ve dealt with the first year. There are some things that I definitely wish I had known right off the bat last year, and here’s some them!

1.    Patience is a virtue!

As many people that have MS will know, and for those of you recently diagnosed will learn, there’s a lot of waiting that happens. I waited two months before my first doctor’s appointment after getting diagnosed, and at times that was very frustrating. Knowing that I was living with this, but not knowing anything about from a medical professional was also kind of scary. (Shout out to the MS Society’s website for giving info and putting my nerves at ease!). Besides that, waiting for appointments, medical exams like MRIs or CAT scans, for treatment my patience has been tested. You learn how to wait out those moments, and your patience grows, which is a good thing.

2.    There are really bad moments.

It can kind of really suck sometimes living with MS. Case in point, this past winter break. I had my worst relapse to date: constant nausea, constant vertigo, and loss of movement in my hand and legs, constant tiredness. I spent the vast majority of my winter break on my couch at home, doing absolutely nothing, because I couldn’t (except for venturing to the hospital 5 days in a row for a dose of steroids, even on Christmas.) For somebody who thrives on the energy of others, gets bored of non-activity quickly and is extremely extroverted, this really sucked. I didn’t know how bad my relapses could get so I was so unprepared for it. However, it passed, and I haven’t had a relapse since!

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Start of Something New

Written by on June 11th, 2013 – 8 Comments

Hi there! My name is Juan, and this is my first post, so I should probably introduce myself. I’m very excited to be part of this initiative as it has served as great aid and help to me since I’ve been diagnosed. You see, I was diagnosed with MS in July 2012, so it hasn’t even been a year since I’ve known that I’m living with MS. The time that I’ve seen my neurologist, shorter, and the amount of time that I have been going through treatment for it, even shorter. I’m relatively new to this community, and so, as part of the Internet Generation, I was instantly drawn to the blogosphere that revolves around MS. The someoneonelikeme.ca (et commemoi.ca) has served to bring comfort and put my mind at ease knowing that I wasn’t the only young person with MS.

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