Author Archive

1 year anniversary

Written by on November 18th, 2014 –

It’s November already, wow! How time flies. Here in Edmonton, we’ve been enjoying a beautiful fall, with temperatures still in the double digits (on the plus side). That being said, we know winter is almost here, and I think I speak for all of us when I say we are dreading it!

November is an important month for me, though. This November marks 1 year that I have been relapse free. I really can’t believe it sometimes. Going from relapses every 6-8 weeks to a whole year without a single problem feels amazing. I have a life again, and it’s pretty sweet. Thank you, Gilenya!

The past few months have been a blur of changes. My boyfriend and I bought a house and moved in this past June. Then we brought home 2 black lab/border collie cross puppies shortly after. These two little dogs (Bo and Ruby) have been so good for me and my MS journey, and I just love them so much. They definitely keep me active with daily trips to the dog park where we go for hour long walks – and I can actually keep up. My dream for my pups is to volunteer with them as therapy dogs, specifically with MS patients, although I’d happily take them to nursing homes, children’s hospitals, or wherever they are needed. They’re a little young for it now (they are 6 months old) but we’re working with them every day to get them trained for when they are older.

Do any of you have pets that make a difference in your life and/or your MS journey? Please share in the comments, I’d love to hear about them!

If You’re Going to San Francisco…

Written by on May 20th, 2014 – 3 Comments

kirstimom MSwalk SanFran (2)What an amazing city. This wasn’t my first time to San Francisco, and it won’t be my last either. It’s such a beautiful, interesting city with all the old Victorian row houses, the cable cars, the bay, the bridges, the piers, and so on. If you have never been to San Francisco, you must go – you won’t be disappointed.

This trip was pretty special. My family was invited to San Francisco for the MS Society’s “Walk of Champions” – a walk for anyone who raised over $10,000 for the MS Walk in their own city. Since my dad raised $13,550 last year in Edmonton’s walk, we got to take this amazing trip. We also extended our stay in San Fran for a few days, so we had time to explore. (more…)

I Forgot About MS

Written by on March 25th, 2014 – 4 Comments

I never thought I could, but I actually did forget, for a few days, that I’m living with a chronic illness. I just got back from a two-week vacation in Tampa, Florida. Considering that Edmonton has been -25C and colder for the last few weeks, it was sure a nice break!

I’ve been struggling with my MS for the past 2 years, having relapse after relapse, trying one drug after the next, and nothing was able to get my MS under control. This past October, I decided to try a second-line treatment, because clearly none of the first-line treatments were doing anything for me. I started on Gilenya in October 2013, and what a difference it has made! I’m now going on 4 months relapse-free (previously, I was in the hospital getting steroids every 2 months – sometimes less than 2 months). All of the on-going symptoms that I have had for 2 years (balance, numbness, tingling, etc.) are fading away. I feel stronger every day. I stopped using my cane months ago, and now I can actually go for long walks, just like I used to before MS came along. I’m actually quite amazed!

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My Story

Written by on October 1st, 2013 – 8 Comments

Welcome to my very first blog post! I am going to take this opportunity to introduce myself and share a bit of my “MS story.”

I am 28 years old and I have been living with MS for almost 4 years. It has been one hell of a journey, let me tell you.  While being an MS patient is a significant part of my life, I prefer not to define myself as such.  I prefer to define myself as a University student, an Administrator at a film production company, an older sister to two younger sisters, a daughter to my amazingly supportive parents, a good friend, and a girlfriend to the kindest, most thoughtful man I have ever known. Most importantly, I like to define myself as an independent young woman.

I have always been an independent person. Time after time though, MS tries to take away that independence.  Sometime it succeeds, but usually it does not.  When I was 24, I was in my prime.  I had, through exercise and healthy eating, lost 80 pounds.  I felt really proud of this accomplishment, and my confidence was through the roof.  I was working full time at a great job, which allowed me to travel with a good friend quite frequently. About a month after my weigh-in at the 80 pound goal, I woke up one morning with the worst headache of my life.

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