Author Archive

The Heart of It – One Day Young Adult Conference in Winnipeg on June 11

Written by on April 26th, 2017 –

Calling young people in or near Winnipeg!

The Heart of It is a one-day event specifically for young adults in their 20s and 30s who are living with MS or are close to someone with MS. It is a day for personal growth, connecting, sharing, learning and having fun! This is an opportunity to build skills and knowledge and enjoy new experiences. You can see the program at

You can register online at Register by June 6!

Calling all students living with MS….

Written by on March 16th, 2017 –

MS Summer Camp is back!

Written by on April 8th, 2014 –

Camp is open to youth ages 8-21 living with MS. It’s free! For more info, visit

Have you ever gone white water rafting, kayaking or on an overnight canoe trip?  Have you used a pottery wheel, tried archery, fishing or sailing?  These are all things I got to experience at MS Summer Camp!  The best part of it all is that every activity and adventure is made accessible for all campers!  Everyone is included and helps encourage the others who are a little nervous about the new activities and experiences.  The feeling of conquering a new adventure is priceless.

I’ve had the opportunity to be a camper as well as a Peer Support Leader at MS Summer Camp.  I’ve felt the nervousness of going to a new place with people I didn’t know, but it was quickly to pass when I showed up to catch the bus to camp and was greeted with big smiles and hugs.  Everyone is so accepting and kind!  Great friendships form quickly at camp and are such a support throughout the years!  Within the first night as a camper, it felt as though I had known the other campers for years.  Everyone is very open to sharing their experiences living with MS and it’s a comfort in knowing that we are not alone.  I was very excited to be able to return to camp as a Peer Support Leader and give a shoulder, an ear and some security to new and existing campers.


Modern day hero

Written by on November 26th, 2013 –

By: Katia (blogger for – the French version of

What is a hero, if not someone who inspires us? Someone who continues to move forward, despite the pain and fatigue? Someone who continues to fight?

On October 18th and 19th, I was lucky enough to be offered a unique volunteering opportunity in Montreal. I represented F.U.MS, the foundation started by Billy Talent’s drummer, Aaron Solowoniuk, who himself lives with MS. Accompanied by my sister, my mandate was to sell F.U.MS t-shirts as well as distribute buttons for the MS Society’s website. As fans of the band, we last saw them in Quebec City three years ago and were really excited for these Montreal concerts; we were going to have the chance to attend their concert, not once but twice, at the Metropolis!

In the end, our promotion of F.U.MS and at the concerts created a lot of awareness. Young fans, when learning about Aaron’s condition, felt concerned. Back when I learned about it, I remember having a similar reaction: how can he have MS and drum in a band?? How did he make this work with the amount of energy that shows and tours must demand? I was immediately very impressed, but mostly inspired.


Webinar invitation – Working it out: MS & employment

Written by on October 16th, 2013 – 1 Comment

Interested?  This event is happening Saturday Nov 16 at 1:00 pm (Eastern time)

Option 1 – webinar

Option 2 – Attend in-person in Toronto

We know the unpredictable and episodic nature of MS often leaves people with many overwhelming questions and decisions relating to employment.  This session will help participants navigate the landscape of employment issues as they relate to MS. A lawyer will highlight rights and obligations of employees and employers, a specialist on episodic disabilities will discuss general considerations when looking for work as well as provide an overview of income replacement programs, and an employment counselor – who also lives with MS – will discuss issues of disclosure, communication tips to employers, and thoughts on making future career decisions.

Click here for more information or to register for this event.

World MS Day – May 29, 2013

Written by on May 29th, 2013 – 2 Comments

For World MS Day, the MS Society’s Youth Advisory Group wanted to profile a young person with MS!

Meet Amanda Piron

Age: 22           

Home City: Aurora, Ontario

Years with MS: 6 years

Amanda is currently finishing her bachelor degree at the University of Toronto in theatre and drama studies, with a minor in English and Canadian studies. In addition, Amanda will be attending teachers college in the fall.

First Symptoms of MS: Loss of balance, leg stiffness, and numbness in the feet.

Most difficult challenges with MS: Her profession requires long hours, and most performances are at night……she finds it difficult adjusting for needs in her career.

Future goals: Amanda wants to earn enough income to support her family with a career in the arts.

Most influential person: Mom.

Any advice for someone with MS: Be yourself. Do not compromise who you are, and fight for yourself.

Something unique about Amanda: Traveled across most of Canada in a day with A&W to support MS.

MS Summer Camp and volunteer peer support leader opportunity!

Written by on May 28th, 2013 –

The MS Society runs a free summer camp for kids living with MS ages 8-21. There are still spots available! The camp and travel are free for Canadian campers. We also have spots for campers outside Canada. Check it out at and watch the video! This year it’s in Alberta from Aug 17-24.

We’re also looking for a male Peer Support Leader for camp. This is an amazing volunteer opportunity for someone in their 20s or early 30s living with MS to be a role model and support for campers.

Contact for more information or for an application for either opportunity!

There Is No Limit

Written by on March 26th, 2013 – 6 Comments

My name is Owen and I have MS. You are not alone or even limited as to what you can do. I have done stuff that would put most people to shame. I went sky diving. It was mind blowing and so much fun – everyone should do it because it gives you a new respect for life. At the bottom of this you will see the link to my Youtube video of my sky dive.

Anything is within your realm of possibility – if there is a will to do it, there is a way. I thought at one point my life was over because I used to be active. I played every sport in the book (not all at the same time). I loved to spend time at the local conservation area. If I wasn’t down there, I was with the Army Cadets where I was the head cadet. So you can imagine how devastated I was at learning that I would be in a wheelchair.

Then I learned it was not me I was upset about but rather my capabilities. It took some time as all change does but I overcame it as you can too.