Archive for October, 2015

A Medical Meme!

Written by on October 20th, 2015 – 2 Comments

LelainiaLloyd

1. The illness I live with is: Neuromyelitis Optica (NMO)

2. I was diagnosed with it in the year: 2012 (previously mis-diagnosed with MS in 2007)

3. But I had symptoms since: I was 12 years old.

4. The biggest adjustment I’ve had to make is: Dealing with fatigue, a lack of sensation in my hands & bouts of severe pain at the base of my skull.

5. Most people assume: There’s nothing wrong with me. Apparently, I look fine, no matter how much pain I am in.

6. The hardest part about mornings are: Waking up feeling just as tired as when I went to bed.

7. My favorite medical TV show is: M*A*S*H is a staple in my house. I never get tired of it. I also enjoyed HOUSE, MD & Nurse Jackie. (more…)

Why It’s Important To Vote

Written by on October 13th, 2015 – No Comments

It’s important to vote because it’s important to have your voice heard.

No.

It’s ESSENTIAL to have your voice heard.

JuanAs people living with MS, or that have loved ones with MS, we are a marginalized community.
Our society, our cities, our transit systems, the economy and job markets and our educational opportunities are not designed for people with MS.

And yet we are living valid and legitimate lives and we deserve to have equal access to services, goods and full participation in society.

And how does that happen?

A change to the system. A change in the ways that elected officials and policy makers make decisions. A change in mindset. To a mindset that doesn’t think of accommodations or accessibility needs as after thoughts, or upgrades to systems or great ideas. But a mindset where the great idea is one that is right-off-the-bat accessible to everyone.

And that can happen in communities. That can happen at the micro-level. But often times, these ideaSLM1s require the support, resources and funds of governments.

So on October 19th (or in the advanced polls), please make sure you vote. And tell your friends to vote. Vote for yourselves. Vote for your friends and families. Vote for the community. Vote for those that can’t. But most importantly…

Vote to #endMS. Vote to increase support for caregivers. Vote for changes to the system so that people with MS are able to live independent lives, fully and actively participate in our society, and vote for a Canada where we are committed to caring for those that are disadvantaged and finding ways to get rid of those disadvantages.

Learn how to vote, where to vote and when you can vote by visiting the Elections Canada website.

Be Prepared!

Written by on October 6th, 2015 – No Comments
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My neighbour’s fence, damaged in the storm.

A few weeks ago, Vancouver, BC and the surrounding areas were hit with a pretty substantial wind storm. It was a Saturday afternoon and I was home with my husband. I had a crock pot of soup I’d just started cooking and a loaf of homemade bread rising on the counter when without warning, our power went out.

I didn’t think was going to be any big deal-in the past, the power had only ever gone out for a couple of hours. I hoped it would come back on soon so I could continue with dinner preparations. Having recently moved, I had no idea where our flashlights were, but I did managed to scare up a bunch of tea lights. Then I realized that because we’re a house of non-smokers, I didn’t have any matches in the house to light them with. I ended up using a butane BBQ lighter which was almost empty to light them.

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