Archive for March, 2015

Hard Decisions…

Written by on March 31st, 2015 – 2 Comments

I’d like to start my blog by saying this is just my story and I’m not advocating for anyone to do anything other than listen to yourself in making choices regarding your life and MS.  I was diagnosed with MS in 2010 and have been on medications since a few months after diagnosis.  I selected an injectable medication at the time based on lowest side effects, ease of use for travel with work to remote locations (expiration outside the fridge) and so forth.  This medication was injected into deep fat layers under my skin.  I wanted to live my life the best way possible with as minimal interference.  Adjusting to the drugs was difficult – the huge itchy welts that didn’t go away etc but I was committed and after about 3-4 months of this I got through it and things became better.  It took much out of me to deal with this and I won’t down play the difficulty.  I felt, at the time, I was set for a long while despite the nurses forewarning “some people have injection site issues and cannot tolerate being on injectables in the long term and some people have no issues!”  I never missed taking my medications and I depended on this as one of several things to manage my MS.  After 2 years of being on my medication, I observed the dreaded injection site reactions – the lipoatrophy (death of fat layers) first in my arms and then finally in other injection locations despite vigilant rotation of injection site locations.  I realized my time on these medications was slowly coming to a halt and this issue essentially eliminated a whole suite of other drug options (because they required injection into the same type of tissue).

Last year I set a timeline in which I would chart my next steps in moving forward. I gave myself a year to figure things out.  I had to make difficult decisions and I wanted to be informed about what was next for me – at first it was mass learning about which drugs were available.  I learned much about the oral medications coming on the market and of their side effects.  The reality is all the drugs have side effects and all were harsher than the medications I was on.  I spent several months feeling like my only option was to change drugs and I was set that this was my path forward.  I was scared to make change –any change that might make me take a turn for the worst.  To me no drugs was fear and thus not an option. (more…)

New Treatment Experience – Day 3-5

Written by on March 24th, 2015 – No Comments

By: Chris Mann, guest blogger

Check out the videos below to see day 3 and 5 of my new MS treatment:

(more…) wins WEGO Health Activist Award!

Written by on March 18th, 2015 – No Comments

Back in thWEGOe fall we were asking that everyone vote for for the WEGO Health Activist awards. I am delighted to announce that won for the category of Best Team Performance!

As described by WEGO Health: “This award is for teams who work better together. Whether it be a group that runs an online chat, a non-profit organization, or a caregiver and patient duo – this award is for a team that takes their activism to new heights because of the assistance from one another”. Visit the link to see the video announcing the winner:

Congratulations to our amazing team of bloggers who share their personal stories and experiences to make the site what it is, and provide support for those around them.

We would like to thank everyone for sharing and voting to help become a finalist. Thank you for your ongoing support!

New Treatment Experience – Day 1 & 2

Written by on March 17th, 2015 – No Comments

By: Chris Mann, guest blogger

Check out the videos below to see day 1 and day 2 of my new MS treatment:


New treatment experience – Part 1

Written by on March 13th, 2015 – 9 Comments

By: Chris Mann, guest blogger

Hi everyone,

My name is Chris Mann.  I’m 35 and live in Victoria, BC.  I was diagnosed with RRMS in April of 2013 and had a very aggressive start to life with MS!  Hence I am starting treatment with Lemtrada March 9th and have decided to video blog each day of my treatment. I hope others can learn from my experience as I’ve learned so much from others with MS. Check out my story below and stay tuned for more updates to come:


Join me for Mandarin MS Walk 2015!

Written by on March 4th, 2015 – No Comments

By: Andrea Mears, Guest Blogger

With the Mandarin MS Walk season quickly approaching, I wanted to share a little bit about my walk experience last year! My name is Andrea and I’m 24 years old. After being diagnosed with MS in December of 2013, I decided to create a team for the Mandarin MS Walk so my friends and family could come together to support the MS Society. Being diagnosed with MS has changed the way I value things in life, specifically my health and wellness. There are difficulties I face on a daily basis that may not be visible to others. Despite the negative impacts MS has on my life, it has taught me about personal strength and resilience the way no other experience has before.