I pose a question to you … WHEN do you like to be reached out to? How often? Do you prefer someone of the same sex? Does age matter? What are your main concerns? It seems like ages ago that I had all these same questions but I was on the other side of the line … I felt like I had no one to talk to.
I am part of a newly diagnosed group, and our volunteer role is to reach out to newly diagnosed individuals. Often I find myself wondering; am I pushy? Am I neglecting? Am I over bearing? Am I scary? A million questions float through my head.
I often find that the volunteer who has had MS for 10 years now is often as nervous as the newly diagnosed patient. Will I be good enough? Will I be able to answer all the questions? Will I come off like I am a pro at this? How can I show that I too was once unsure of the future, and that I still get scared when I have a relapse.
So newly diagnosed … what do you prefer when you meet someone who is more experienced with MS? And what do you HATE?
THANKS IN ADVANCE! 🙂