I am a 28 year old woman with a current diagnosis of RRMS. I have had this disease for just over seven years now. In those seven years I have become acutely familiar with one thing, judgment. Unfortunately, at times, this diagnosis makes me feel judged. Right or wrong as persons with MS we are judged. We are judged by doctors, family and friends. We are judged by the outside world and even judged by our friends within the MS community; a jury of our peers so to speak. I am in no way implying that all judgments are meant to be malicious. It just simply goes with the territory. I wish more people were aware of this fact and endeavored not to play into the judgment game. I would like to hope that in the future these judgments can be removed from this territory and that the simple exchanges of experiences become the primary focus.
Archive for April, 2014
What a year. As my master of business administration (MBA) degree comes to an end, I thought about all the changes that happened in my life, both positive and negative. I really didn’t know what to expect at the start of the program because I was going through my second major attack that I had with MS. All I wanted for was the relapse to go away so I wasn’t in pain anymore because I had other things to concentrate on. Like any new social setting, I was meeting new people and trying to get a feel of the group who I would have the most in common. With every new social setting that I have had before, I seem to gravitate towards those that played sports…an easy way for me to make friends. There were many ups and downs at the beginning as dealing with many type-A personalities can get interesting to say the least.
As the year moved on, I started to become more comfortable and started to make a good group of friends. More importantly, I was learning a lot about people and my interests for after school. At the end of November, while most people were freezing in Canada, I had the fortunate opportunity to visit South America. (more…)
This crusader always has a plan. Sometimes even a back-up plan or two. ‘Type A’, highly organized, creature of habit, have all been words used to describe who I am. I like things well thought out and a plan that is executable. I had my future mapped out well before I graduated high school. I knew what I wanted to do for a living. I thought I had an edge. I had already figured out the elusive path I thought I would take in life. See where I am going with this? Oh the irony, a ‘type A’ planner ends up with the diagnosis of an unpredictable disease. The quote, “We make plans and God laughs” comes to mind. So how does a planner reconcile that certain aspects of life can’t be planned on anymore? With great difficulty and a lot of calming breaths!
Camp is open to youth ages 8-21 living with MS. It’s free! For more info, visit www.mssociety.ca/camp.
Have you ever gone white water rafting, kayaking or on an overnight canoe trip? Have you used a pottery wheel, tried archery, fishing or sailing? These are all things I got to experience at MS Summer Camp! The best part of it all is that every activity and adventure is made accessible for all campers! Everyone is included and helps encourage the others who are a little nervous about the new activities and experiences. The feeling of conquering a new adventure is priceless.
I’ve had the opportunity to be a camper as well as a Peer Support Leader at MS Summer Camp. I’ve felt the nervousness of going to a new place with people I didn’t know, but it was quickly to pass when I showed up to catch the bus to camp and was greeted with big smiles and hugs. Everyone is so accepting and kind! Great friendships form quickly at camp and are such a support throughout the years! Within the first night as a camper, it felt as though I had known the other campers for years. Everyone is very open to sharing their experiences living with MS and it’s a comfort in knowing that we are not alone. I was very excited to be able to return to camp as a Peer Support Leader and give a shoulder, an ear and some security to new and existing campers.
As many of you know who are parents, you don’t have MORE free time … you have LESS FREE TIME!
My blogs have fallen short 🙁
On January 24, 2014 at 4:24am, my beautiful baby girl arrived. Harper was 6 lbs and 8 oz and 19 ½ “ long. She keeps me on my toes but I love her more and more everyday! Thank you all for the well wishes and positive thoughts.
Thankfully, my MS also stayed in remission after I gave birth. I’m told this would be my highest chance of an attack, so we were ready for it. I had my mom and dad come stay with us for a few weeks to ensure I got adequate rest. Keeping my diet and health intact has been a task, but thankfully I prepared meals ahead of time.
All the times I have doubted what I’m capable of and if I could trust my body or not after my MS Diagnosis, were dismissed when I had a natural drug free labor and delivery (which were my intentions). I regained full confidence in what the human body is capable of.
Now if you’ll excuse me … I have a sweet baby to cuddle J