I wanted to share with you that the UBC NMO Clinic & Research Program will be hosting a FREE public information day about Neuromyelitis Optica on Thursday, Oct 17, 2013 from 9 am-2:30 pm. The event will be held at VIFF’s Vancity Theatre, which is located at 1181 Seymour St., Vancouver, BC. Lunch will be provided. If you’re interested in attending, please register here.
Last year’s event was the first time many local NMO patients had a chance to meet others living with this rare disease. It was also a valuable opportunity for those who had been or were in the process of being tested for NMO to gain important information. If you are in the Metro Vancouver area and have questions about NMO, I strongly encourage you to come. Attending last year armed me with enough information that I was able to advocate for a consult with an NMO specialist which ultimately led to finally getting a proper diagnoses. Knowledge is power!
I also wanted to share that I will be one of the guest speakers at this year’s NMO Information Day. I’ll be presenting about my experience with the UBC Interprofessional Health Mentors Program. If you attend, please be sure to come find me and say hello!
The agenda will be as follows :
9:00-9:30am – Registration
9:30-9:45am – Introduction: Dr. T. Traboulsee & Dr. S. Diamond
9:45-10:15am – The NMO Walk/Run: Nancy Reimer
10:15-10:35am – Patient Perspective: Janice Ing
10:35-10:50am – Break
10:50-11:20am – Biorepository news: Guthy-Jackson Charitable Foundation
11:20-11:30am – NMO Pregnancy Questionnaire: Dr. D. Sadovnick
11:30-noon – Questions & Answers (Q&A)
Noon-1:00pm – Lunch & mingle
1:00-1:25pm – NMO resources: MS Society
1:25-1:45pm – NMO-Why your story matters: Lelainia Lloyd
1:45-2:15pm – Questions & Answers (Q&A)
2:15-2:30pm – Summary & Closing: Dr. TraboulseeTags: education, Information, NMO, Vancouver