Written by on July 9th, 2013 – 4 Comments

Multiple Sclerosis; these are two words that changed my life many years ago. They are words I have come to terms with, which I live by and those I advocate for. I pray for a cure and seek a way to end MS. I let people in to my darkest hours with this disease. I have allowed admittance on to the MS roller coaster my life has become. I speak about my experiences so that the person who cannot speak about theirs knows they are not alone. I understand, many of you understand and we will fight to make sure someone else doesn’t have to understand.

I spent the early years after my diagnosis quiet. I wrote in my journals privately while keeping silent on the outside. I didn’t want to talk about MS. I didn’t want to answer questions about it either. I just wanted to live my life like everyone else.  I wanted to be normal. Then it all clicked. What is normal? Why settle for being normal? I stopped being silent. I started reaching out. I started using my voice.

I will happily answer questions about MS from anyone who asks them. Friends, family and strangers; it makes no difference to me.  Sometimes the strangers will say they are sure I don’t want to talk about MS but that is simply not the case. The more accurate information that is out there, the more understanding and action our cause will get. So please join me and speak!

– Loribelle

4 Responses

  1. danben says:

    That ol’ saying it takes two to speak the truth..one to speak one to listen.I too early on in my diagnosis I was very quiet about those initials, bottling up my disgust and despising myself for a long period.Over time I adjusted and got used to it and now I too freely share and answer family, friends or strangers questions for I am not ashamed and as my social worker often reminds me..”not your fault Danny”…”not your fault having M.S.” Never really replied before but now I speak..”I know”..now get me a beer” haha..kidding about the beer:)

  2. F.U.MS says:

    I think we’ve all been through that dark place where nothing makes sense and we just want to be left alone to figure things out. Hopefully coming here and reading our posts will make it easier on some newly diagnosed people. Great blog Loribelle.


  3. zachery says:

    I was diagnosed wen I was 8 and I knew how you fill and I am now 16 in drivers edu its hard but almost over . im going in my first year in high school existed about it and nerves at the same time.

  4. Loribelle says:

    I appreciate the kind words from all of you. I am glad we can all be here for each other and have a support system that is so crucial and valuable to those of us with MS as well as our families and friends!