Multiple Sclerosis; these are two words that changed my life many years ago. They are words I have come to terms with, which I live by and those I advocate for. I pray for a cure and seek a way to end MS. I let people in to my darkest hours with this disease. I have allowed admittance on to the MS roller coaster my life has become. I speak about my experiences so that the person who cannot speak about theirs knows they are not alone. I understand, many of you understand and we will fight to make sure someone else doesn’t have to understand.
I spent the early years after my diagnosis quiet. I wrote in my journals privately while keeping silent on the outside. I didn’t want to talk about MS. I didn’t want to answer questions about it either. I just wanted to live my life like everyone else. I wanted to be normal. Then it all clicked. What is normal? Why settle for being normal? I stopped being silent. I started reaching out. I started using my voice.
I will happily answer questions about MS from anyone who asks them. Friends, family and strangers; it makes no difference to me. Sometimes the strangers will say they are sure I don’t want to talk about MS but that is simply not the case. The more accurate information that is out there, the more understanding and action our cause will get. So please join me and speak!