Archive for March, 2013

There Is No Limit

Written by on March 26th, 2013 – 6 Comments

My name is Owen and I have MS. You are not alone or even limited as to what you can do. I have done stuff that would put most people to shame. I went sky diving. It was mind blowing and so much fun – everyone should do it because it gives you a new respect for life. At the bottom of this you will see the link to my Youtube video of my sky dive.

Anything is within your realm of possibility – if there is a will to do it, there is a way. I thought at one point my life was over because I used to be active. I played every sport in the book (not all at the same time). I loved to spend time at the local conservation area. If I wasn’t down there, I was with the Army Cadets where I was the head cadet. So you can imagine how devastated I was at learning that I would be in a wheelchair.

Then I learned it was not me I was upset about but rather my capabilities. It took some time as all change does but I overcame it as you can too.

http://www.youtube.com/watch?v=Zoi4c6vVIrA&feature=youtu.be

Grace

Written by on March 19th, 2013 – 9 Comments

I had a nickname growing up. It was Grace, because I didn’t have any. I was uncoordinated from the get go and it only got worse. My MS certainly hasn’t helped things. I have yet to find a surface I can’t trip on. I am a master at tripping on flat surfaces. Stairs are definitely not my friend, and heels? Forget about them! I prefer when my two feet are firmly planted on the ground in flats, preferably in fashionable ones. (more…)

So the journey begins… my relationship with Multiple Sclerosis

Written by on March 5th, 2013 – 10 Comments

I always knew that one day I would take care of my parents.  I knew I was part of the ‘sandwich generation’ > folks who would, at some point, take care of both their own children and their parents at the same time.  My mom turned 50 last week… I thought ‘one day’ was 10-15 years away.

The stroke that wasn’t a stroke (not even a TIA) followed by partial paralysis that lasted months;  the loss of function in her hand that eventually came back, months later.  The July morning 2 years ago when she woke up and couldn’t walk.  Except for a brief respite last summer, she hasn’t walked since.

Finally, what we never hoped for

After years of life-changing symptoms… we finally have a diagnosis:  My mother – my beautiful, young, vibrant mother – has Multiple Sclerosis.  She’s never going to walk again.  She’s never going to chase after butterflies with my girls again.  My two youngest will never remember my mom without a walker or a cane.  My oldest asks why her grandma can’t push her on the swings anymore.

I’m angry.  Angry at the doctors that never put 2 & 2 together.  Angry at the genetic makeup that made her susceptible to develop MS.  Angry that she can’t be there for me the way I need her. (more…)