New Directions… discussion welcome!

Written by on February 19th, 2013 – 2 Comments

Changes. It is not just a kick ass Bowie song. Hi everyone my name is Amanda and this is what is left of my blog…

I have been struggling to find something to write. I love this blog and the site and as one of the people who helped nurse it to life I have felt a great connection with all of you. Even if you don’t read my blogs per say, there are many blogs to read and much to discuss in the forum. I think however I still struggle with how to present the kind of topics I want to present while also remaining objective enough to allow for me not to shape or taint your views but instead to offer something to think about. There are many stories surrounding various “hot topics” within the ms society and while I could offer you on the one hand the account of what I have been up to (at the risk of it being nothing other than literature you can fall asleep to at night because I have mostly just been at school) I want to begin a conversation of innovation.

I am not trying to radicalize the entire site by any means- I enjoy everyone’s updates and insights they draw from personal experience-however for my purposes I want to reorganize my blog into an avenue for critical thought. There are things that need to be said and I am ready to say them.

I am coming to terms with the reality of living with MS as an adult. This reality, while exciting, can be off-putting at times and how I cope with it is to research and to read and read and read until i can understand the avenues my life will take even when I cannot predict which avenue my life will take.

So here is the first installment of my blog…

I will try to update you monthly (at least) with some links and interesting things to think about. At least one will relate to MS, directly and the rest will be related somehow however please please please if you have the chance take a look. Take a look at what is happening not just on planet earth however what is going on with OUR world.

 http://www.cihr-irsc.gc.ca/e/45776.html (updates on ccsvi research)

 http://www.sciencedirect.com/science/article/pii/S0022510X12006338 (research being done in bone marrow transplants)

 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3084507/ (diagnostic criteria)

 http://www.neurology.org/content/80/1/69.short (spinal cord lesions)

2 Responses

  1. Suzyq says:

    I was looking at the lesion article. Do you know what cdms is? I am not familiar with the term and its not coming up in searches.

  2. Loribelle says:

    CDMS means Clinically Definite Multiple Sclerosis.

Leave a Reply

Register to save your information. Already registered? Sign in!