Archive for January, 2013

Start of a new year…what will it bring.

Written by on January 29th, 2013 – 1 Comment

It is a start of a new year. Most of us have resolutions that we try to keep. As for myself, I have been reflecting on the past year. What I am going to try to improve in 2013? What should I build on and is important to me? Some of the best advice I was ever given was to reevaluate things every year or couple years.

As I get older, I am slowly figuring out what is important in my life. I have met so many incredible people in the past two years that have influenced my life. Most of us have to take a lot into consideration when we make decisions in our lives. My advice; be selfish. Do something that will benefit your life. Most of us have been through so much, so do something that will make you happy. It could be a trip of some sort to get away and escape reality for a little while. For others, it could be a complete change or something little. Change at times is frightening, because people are afraid of the unknown. As from my own personal experience, change has brought everything in my life….believe me…keep on changing until you find what is right for your life because no one else will. Change will not come easy for many of us. We will fall many times (metaphorically, and literally for some of us) before we take a step forward. Know what it is going to take to make 2013 a better year and go for it; you be surprised at what could happen.

One of the most inspirational videos that I have ever watched was the 2005 Stanford University commencement speech by Steve Jobs (co-founder of Apple). I recommended this speech to all of my friends, and I am now recommending this speech to all of you. This speech really hits home. I hope that this year brings good fortune to all of us. Keep up the battle.

Mike

Never too experienced to ask questions and LEARN from others

Written by on January 22nd, 2013 – 3 Comments

It’s always frustrating when you try talking to even your closest friends and hear “I understand” when you KNOW they have no idea what you’re going through. You try and be thankful for their ear, but sometimes you really need someone to understands EXACTLY what you’re going through.

 A few months ago a local employee of the MS Society organized a get together for about 3 of us girls to chat and just talk about MS and EVERYTHING.  In December, I emailed this girl and told her that I wanted to have a group of ladies over for a chat that she was free to send the email around. We managed to get 7 girls here – we had an ice-cream buffet and just drank a bit of wine and coffee, it was SO perfect. 

 The great thing was we all had that common “bug” in our lives … we all had MS.  Some of us were 30, others were 24, others were 40 – it was so great. (more…)

The Story Of A Rare Bird

Written by on January 15th, 2013 – 11 Comments

Around this time last year, my vision got blurry like someone had smeared Vaseline over my eyes and it felt like my right eye was being pulled out of the socket. The pain was somewhat like the bad migraines I have frequently and also similar to a sinus infection. I went through four episodes of this between February and July. Despite numerous attempts to get to the bottom of why this was happening, for some reason the obvious answer kept being overlooked. Finally in late July, I happened to mention it to my MS Specialist. She immediately referred me to a neuro ophthalmologist who ran a ton of tests and informed me that my problem was optic neuritis. In light of my medical history, he wanted to run an additional test, for NMO-Neuromyelitis Optica, a disease which very closely resembles MS.

I’d had an NMO test 5 years ago when I was in the process of being diagnosed with MS and it had come back negative. While I was waiting on the results of this latest test, I learned through the MS Society that I had the opportunity to learn more about NMO by attending a patient information day out at UBC. I signed up and went.

Two weeks later, my NMO test results were in. I’d tested negative again. You would think that would be the end of it, but no. The problem is that the NMO test is not foolproof. Forty percent of people who get a negative result test as a false negative. You can test negative and still have NMO. Fortunately, thanks to attending the NMO patient information day, I was able to arrange to get a consult with an NMO expert, one of two in all of Canada.

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Could it be my “new thing”?

Written by on January 8th, 2013 – 2 Comments

Recently I’ve been talking to my sister-in-law about something she firmly believes in, “Body Talk”. It got me thinking, maybe I should try this and see how it goes? I had my 1st session last week here in Saskatoon …. I had mixed feelings (but good ones).  It was useful, informative, relaxing, and kind of eery how exact it was. 

Body Talk is a non-invasive technique that helps stimulate the bodies own ability to heal itself.  As most of you know, I recently went off my medication (by choice) and I’m not saying that ANYTHING I try will CURE ME … but why not help me feel like I’m doing something productive?

My Body Talk session involved me laying there for about an hour while the practitioner asked my body questions, and my body responded in different answers.  (more…)

This is the Life I Know

Written by on January 2nd, 2013 – 1 Comment

When times are hard, my mother would apologize for not giving me a normal childhood. As I got older, I would react with anger and frustration. Not because I didn’t get what children with “normal” parents got, but because there was no need for apologies.

My parents never brought me to the Aquarium, Chucky Cheese’s (is there even one in BC?), or Watermania. But they provided me a supporting and loving home to grow up in. I have never been to DisneyLand nor any other family vacations, but I had someone to go to when I scrapped my knee, lost my first love (or so I thought), and destroyed the oven when my brownie mixed overflowed. Of course, I imagine day trips and vacations with family is great. But I don’t know a different life; my mother has always had MS.

Perhaps I missed out on a lot of things. But if I went down that road, there would be a lot of other “what if”s. What if my parents were wealthy? What if Daddy was a superhero? What if I’m secretly a princess who’s currently kept in Canada in a foster home to be kept away from a corrupted empire? (Okay, I’m just letting my imagination run wild on the last one. I don’t think I’m the only kid that has ever thought of that though… I hope.) There are a lot of things that could, might, and may be. That won’t change what already have happened. In the long run, there are a lot of things I hope for. For now, living day by day and appreciating what we have is all we can and should do.

Love, support, and open communication, is how we show we care about each other. This is the home I grew up in. It’s not always perfect, and we bicker here and there, but this is the life I know.