Endorse someonelikeme.ca for the WEGO Health Activist Awards!

Written by on October 28th, 2014 – No Comments

WEGOWe are pleased to announce that the Someone Like Me community has been nominated for the WEGO Health Activist awards this year!

WEGO Health Activist Awards celebrate leaders in online health communities, making a difference in the lives of patients and caregivers. This allows health activists to connect, raise awareness and be recognized for the difference they’ve made in other patients’ lives. Someone Like Me has been nominated for Best Team Performance – This award is for those teams who work better together. Whether it be a group that runs an online chat, a non-profit organization, or a caregiver and patient duo – this award is for a team that takes their activism to new heights because of the assistance from one another.

WE NEED YOUR HELP!

Please endorse Someone Like Me for the awards by visiting the Someone Like Me nominee page and clicking the endorse button. An endorsement is a way to give nominees a visual show of support. The three nominees in each award category with the highest number of endorsements will automatically become finalists. Please share this link in your network to help spread the word!

We appreciate your support and all of your ongoing participation in this community! Thank you!

 

 

Visiting the Neuro-Opthomologist

Written by on October 21st, 2014 – No Comments

eyeMany of us living with Multiple Sclerosis and Neuromyelitis Optic (NMO) are likely to experience optic neuritis at some point, making it necessary for us to see a neuro-opthomologist. I thought I would take this opportunity to share what happens during a neuro-opthomology appointment.

Ophthalmology is the branch of medicine that focuses on the anatomy, physiology and diseases of the eye. Most people with visual issues see an opthomologist on a yearly basis. Generally speaking, an opthomologist is an expert in medical and surgical eye problems and will perform standard tests to evaluate the health of your eyes and if needed, prescribe glasses or contact lenses to correct your vision.

Neuro-ophthalmology is the sub-specialty of both neurology and ophthalmology focusing on visual problems that are related to the nervous system, so those of us living with MS or NMO are usually referred to a neuro-opthomologist through our clinic when we develop optic neuritis. A neuro-opthomologist’s skill set is very specific and they have a number of specialized tests allowing them to recognize even subtle changes to the optic nerve so they are better able to diagnose optic neuritis and other neurological conditions that can affect vision.

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That constant employment question

Written by on October 14th, 2014 – 2 Comments

workSo I haven’t been blogging in awhile and I must apologize for that. I think partially because I have been slightly putting MS on the back burner. That’s not to say that I’m ignoring it, or not taking care of myself, it’s just that I’ve worked hard to be where I am, and now although I have daily symptoms I’m the best I’ve been for awhile and so am just putting less emphasis on the MS thing and more just trying to live my life. I hope that makes sense!

Well one of my perhaps biggest struggles I have living with MS is with juggling it and employment. As many of you may know I am trained as a teacher, but after 5 years teaching I was let go due to “low numbers”. So once again I was on the job hunt. I was offered a few interviews for fly-in reserve schools up in Northern Ontario, but I figured there was too much risk involved in that if I can’t easily see a doctor or get medication if I need it. I considered supplying but it makes me nervous to not have steady income or benefits for an indefinite period of time.

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My favorite SEASON IS HERE! What’s yours??

Written by on October 7th, 2014 – 7 Comments

DSC01602This topic is as simple as it suggests, what’s your favorite season? When does your body feel the best?

I LOVE FALL !!! Yes I love summer, but unless I’m laying by a pool with quick access to cool my body off – I prefer a temperature where my body doesn’t over heat.
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Win a Free F.U.MS T-Shirt! -Contest now closed -winners to be notified shortly!

Written by on September 30th, 2014 – No Comments

Tell us why this website is important to you? Is there anything that we can do to improve it so that it better meets your needs?

We are giving away free F.U.MS t-shirts donated by Aaron Solowoniuk of the band Billy Talent! Email Someone Like Me at someonelikeme@mssociety.ca to be entered into the draw!

FUMS1FUMS2

Why I Don’t Need Your Pity

Written by on September 16th, 2014 – 2 Comments

Anybody that knows me, also knows that I am a HUGE fan of TEDTalks. If you don’t know what TED is, it’s an international organization dedicated to spreading ideas and innovation around Technology, Education and Design (see what they did there?).

One of favourite recent talks is one by comedian and disability advocate Stella Young. In her talk, Stella talks about experiences she’s had in her life that have led her to see that in today’s society, disability is being objectified as a form of what she calls “inspiration porn”.
http://www.youtube.com/watch?v=SxrS7-I_sMQ (more…)

How Will They Know What I Need?: Disability Services in Post Secondary

Written by on September 11th, 2014 – 5 Comments

Being in post-secondary can be a very stressful time – so trying to figure out to manoeuver one’s MS diagnosis at the same time can make it even more difficult, especially if a flare-up hits at an inopportune time.

Luckily there are many services available to post-secondary students available at universities but at times it can be difficult to try to figure out where and how to get said services.

On September 20th, the Multiple Sclerosis Society is hosting an event titled “How will they know what I need? Accessing disability services post-secondary” at York University. Students with MS and their families are invited to participate as different services are talked about by staff.

I’ll also be speaking at it briefly about my experience in post-secondary with disability services and navigating the system.

I invite you all to this orientation and lunch. I’d love to see you all there.

Register for the event here: http://mssociety.ca/toronto/events.htm#postdisablility

#SwimMS

Written by on August 26th, 2014 – No Comments

blogger-image--1507966009

(Kits Beach, Vancouver, BC, Canada)

So a few months ago, you may have read my post about Taryn Lencoe’s 12 hour solo ocean marathon swim for MS. My husband has known Taryn’s dad since he was a kid (he was my husband’s swim coach) and we had crossed paths at Vancouver Open Water Swim (VOWSA) events, but the day I interviewed Taryn to write the post was the first time we’d met.

Taryn is a beautiful woman-she is warm and funny and has a gentle, thoughtful spirit that belies the fierce competitive streak that lies beneath. When I met her, I just wanted to hug her and by the time we’d finished talking, I did just that. You can’t help but like her instantly.  (more…)

Uninhibited

Written by on August 19th, 2014 – 3 Comments

20140812_164053We all know that at times, with MS, it can feel like we are weighed down by it. Sometimes the simple things become more difficult and time consuming. So when can we feel completely free? When do we feel thoroughly uninhibited and free? Can we? The answers are different for everyone and I certainly can’t speak to anyone else’s answers but I can give you mine. For me, I do think I can be uninhibited and free.  I feel utterly free in the water. Water is the equalizer for me!

 

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To the Newly Diagnosed…

Written by on July 22nd, 2014 – 6 Comments

I pose a question to you … WHEN do you like to be reached out to? How often? Do you prefer someone of the same sex? Does age matter? What are your main concerns? It seems like ages ago that I had all these same questions but I was on the other side of the line … I felt like I had no one to talk to.

I am part of a newly diagnosed group, and our volunteer role is to reach out to newly diagnosed individuals.  Often I find myself wondering; am I pushy? Am I neglecting? Am I over bearing? Am I scary? A million questions float through my head.

I often find that the volunteer who has had MS for 10 years now is often as nervous as the newly diagnosed patient.  Will I be good enough? Will I be able to answer all the questions? Will I come off like I am a pro at this? How can I show that I too was once unsure of the future, and that I still get scared when I have a relapse.

So newly diagnosed … what do you prefer when you meet someone who is more experienced with MS? And what do you HATE?

THANKS IN ADVANCE! :)