Interesting read…your thoughts?

Written by on September 1st, 2015 – No Comments

I read this information below to a group of people the other day…found it interesting who agreed with which statements! This was from an article posted on the MS Society of Canada facebook page – my thoughts are below each comment… You don’t have to agree with them of course!

11 Things You Should Never Say to Someone with MS

1)  “You don’t look sick.”

–       I have often wished that I would have shaved my head when I was diagnosed … so I didn’t get this comment. The hidden part of this illness can sometimes be the hardest I find.

2)  “You’re still young enough to get better.”

– uh thanks?

3)  “I don’t know how you caught that.”

– Thanks, neither do I? so stop blaming my dad whose a farmer…I don’t need to blame someone in order to feel better

4)  “Don’t they have a pill for that?”

– they have a pill for everything … some are legal, some aren’t

5)  “I have a friend with MS and she never misses work.”

– that’s awesome! I actually have the flu today … not MS ha

6)  “You are progressing so positively, you must not have what they thought.”

– or I’m a rockstar!

7)  “You use it as a crutch.”

 

 

 

 

 

 

 

8)  “How did you get approved for disability and I didn’t.”

– my writing is easier to read … :)

9)  “My mom had that, and she exercised and now she is cured.”

– miracle cure …. Awesome!

10)  “If you wake up earlier, you could sleep at night.”

– probably true most days .. but today .. I’m exhausted … MS

11) “It could be worse.”

–       You’re right … it could be (I can’t say I disagree w/ this one 100%.)

–       There was a general consensus .. that when someone with MS tells you this, it’s more acceptable then when just a random person tells you this

 

What are your thoughts about these statements??

MS Can’t Stop Me – A Free Forum for Young Adults

Written by on August 25th, 2015 – No Comments

Do you have MS or have a family member with MS? Are you between the ages of 18-26?

If so, then join us on October 24 & 25 in Kitchener, Ontario for a chance to share and collaborate with your MS peers. Get comfortable telling your MS Story to different audiences, find out how to influence public policy as a young person, and get prepared to transition into the world of work while still managing your MS, or maintaining your role as a caregiver. MS Can’t Stop Me participants will learn valuable personal leadership skills and develop tools to become MS leaders of the future.

SPEAKERS INCLUDE:

◆ Youth Advocacy Training Institute
◆ Deanna Matzanke – HR/Diversity Professional and Lawyer
◆ Kate Hodgson from 9-5 Narrative
◆ Members of the MS Society Youth Advisory Group
◆ And more!

WHERE: Holiday Inn Kitchener Waterloo Hotel & Conference Centre

WHEN: Saturday, October 24, 5:30pm (following the MS Connect 2015 conference) to Sunday, October 25, 4:00pm

All costs for this event, including Saturday night accommodation at the Holiday Inn, will be covered by the MS Society of Canada. You may also be eligible for a travel subsidy.

For more information or to register: visit mssociety.ca/YoungAdultForum or call 1-800-268-7582 ext. 3170

MS Can't Stop Me 2015 poster

Fast Forward your MS Knowledge

Written by on August 18th, 2015 – No Comments

On September 16th, individuals in the Mississauga and surrounding area have the opportunity to attend an evening of expert commentary and discussion on current and emerging management strategies for Relapsing Remitting MS.  Attendees will learn from Dr. Carolina Rush’s insights on the importance of early treatment, when to consider switching therapies, and risk/benefit therapy considerations.

To register please email fastforward@mssociety.ca or call 1-800-843-2438 with the names of all attendees. This meeting series is intended for individuals diagnosed with Relapsing Remitting MS. We encourage you to invite your friends and family to this event and let us help you #fastforwardyourmsknowledge.

September 16, 6:30-8:30 pm

At the Hilton Meadowvale Hotel, Hazel Ballroom

6750 Mississauga Road, Mississauga, Ontario, L5N 2L3

Refreshments will be served from 6:30 – 7:00

This event will also be accessible via webcast for those unable to attend the meeting in person: https://www.webex.com/login/attend-a-meeting (meeting number 682 733 232)

Don’t forget to follow us on Facebook and like our page www.facebook.com/fastforwardyourmsknowledge!

FF

Gone On Vacation… And Bringing MS With Me

Written by on August 4th, 2015 – 2 Comments

AndreaI’m writing this on a plane, on my way home from visiting family. A lot of my relatives live on the east coast and it was a yearly trip when I was younger. This was the first time I’d been out for about 5 years and it was a great chance to see relatives and re-live childhood memories!

I’ve travelled a lot in the past 10 years or so, including teaching overseas, and travelling from there. I’m determined to not let MS stop me from experiencing the world. I’ve travelled even when I was out of remission at times, but for some reason it was a more difficult trip to pack for and plan this time.

Things have changed a bit, so when I packed to leave I had a suitcase almost full entirely of medical needs, including a large amount of food as MS related digestive issues are becoming very problematic, but can be managed by eating carefully. I also had quite a few “just in case” items like my cane. Complicating things further was that I drove with my parents one way and flew home, so that left me trying to plan and pack and re-pack for different requirements.

But the real point is that it was possible, although requiring a lot of planning, lists, re-packing and thinking through things I made it, I was there to see family, I waded in the ocean (even though the cold water hurt), I had some seafood and most of all was able to participate in a family vacation, and I lived to tell the tale!

I hope whatever you are doing this summer you are enjoying it! Happy Trails to all those travelling!

It’s so Hot…Well, no not Really!

Written by on July 28th, 2015 – No Comments

So I know that I have been posting a lot about “my fitness journey” lately.  Well this stays true to that theme!

I did in fact run in a 5km “fun run”.  My goal was to try and run 4 out of the 5 kilometers.  I ended up doing intervals, 4 minutes jogging and 1 minute walking, and they ended up routing us wrong so I ended up jogging 7 or 7 and a half kilometers. I’ll call it a success!

I’m still running and following a program.  I get frustrated sometimes because I’ve been running for about 2 weeks now and still am not able to jog 5km, but I have to keep reminding myself that this is progress, and besides it’s pretty awesome that I can run at all!

I’ve certainly run into some stumbling blocks (no pun intended!) After a few minutes of running, my legs go numb and it feels like running on knives each time I step down, but I can keep going, so I do!  As it’s getting warmer the heat is causing more of an issue.

I’ve been thinking of trying the cooling clothing for a while, and after reading the article in the MS Canada newsletter I decided to give it a try.  I was unsure of what would suit my needs best, but settled on a belt as I thought it would move best while exercising.  I have found it allows me to exercise for longer, and I tend to go further with feeling in my legs.  Anything to keep me running for longer!  I really enjoy it!

Negative attitude anyone?!

Written by on July 21st, 2015 – 3 Comments

Random topic I know … but an important question I believe.

Do you often find that ANY diagnosed illness or condition CAN lead to an excuse to be negative??

Do I agree with this? To a point – yes.  I think any diagnosis is shocking and everyone deals differently. Some hit rock bottom before picking up the pieces, some stay at rock bottom, some never get that low – it varies, I realize that.  I’m not telling anyone how to act or react …

question markMy question is this;

When does having a negative attitude get to be too much? When are you allowed to slap someone silly and say “relax, it could be worse” or “stop being a downer to everyone else”.  How long do you let someone play their pity role?

I have always believed that MS (or any illness) does NOT allow you to be the “negative nancy” of the group …

Would love someone’s input on how to approach people who are negative with their illness … and I don’t mean “down days” .. I mean pity days ALL THE TIME.  Who go on and on about how awful this illness is the worst – it’s fine if they choose to poison their own life with that attitude,  but what about when they start to poison other people (with or without MS) and put bad thoughts in their head about this illness?

Thoughts?

 

$100,000 Follow the Leader scholarship awarded to exemplary Toronto student

Written by on July 14th, 2015 – No Comments

Allie2

The Multiple Sclerosis Society of Canada is proud to announce that Toronto student Allie Sherwin has been awarded a Follow the Leader scholarship, which is made possible by the support of the KRG Children’s Charitable Foundation. Sherwin, whose mother has primary progressive multiple sclerosis, will receive $100,000 towards her expenses throughout her four year undergraduate degree – a degree she hopes will lead to a career in MS research.

“It’s such an amazing opportunity,” says Sherwin, who is set to begin her studies at Western University in the fall. “It’s been hard to watch my mother’s health slowly get worse. This scholarship will help me make a difference in the lives of people who are dealing with the same thing.” (more…)

Congratulations on WEGO Health Activist Awards win!

Written by on July 7th, 2015 – No Comments

CertificateCongratulations again to the someonelikeme.ca and commemoi.ca bloggers who won the WEGO Health Activist Awards for best team performance in March 2015. We received a prize pack with an iPod and would like to award it to one of our very deserving bloggers. For the next 5 months, for every blog posted on someonelikeme.ca or commemoi.ca, the blogger will get their name entered into a draw to win the prize. Stay tuned in December to find out who the lucky winner is!

Don’t Let It Change You

Written by on June 30th, 2015 – No Comments

MariaGrowing up I was always happy, smiling and laughing. When I got diagnosed at 15 though, things changed. I didn’t realize it at the time, but I became bitter. It wasn’t until twelve weeks ago, in fact, that I realized that I was angry. Throughout high school I kept it hidden behind SAT prep books and the quiet girl façade, but under the smile and kind ‘hello’ I was mad. I hid it so well that I didn’t even know it was there. All I remember feeling was shock

It took a life-shattering event to force me to deal with my anger. Twelve weeks ago my best friend in the whole wide world passed away. She was my first friend, my best friend, and my grandma. Her passing destroyed me. It wasn’t uncommon for me to end up sitting in the shower sobbing letting the water wash away my tears. I spent many nights trying to find clarity at the bottom of a bottle. I could feel the anger boil up inside me. Little things that I would normally shrug off made me very upset. My patience became non-existent. (more…)

The Gift in MS

Written by on June 23rd, 2015 – No Comments

By: Andrea, guest blogger

grat·i·tude
/ˈɡradəˌt(y)o͞od/
noun
      the quality or feeling of being grateful or thankful:

Gift.  Normally we think of happiness and gratitude when we think of receiving a gift.   What I have learned, is that sometimes those reactions can be delayed.  But when you learn to accept a gift with an open mind, gratitude eventually ensues, and your heart will begin to smile.

View More: http://lyndsayessonphotography.pass.us/andrearhI am a newcomer in the world of MS.  In fact, I basically still have a visitor’s pass, as I wait here in Limboland for the gates of MS to open.   I have one clinical symptom, optic neuritis, and a stable brain MRI that shows two lesions.  My major symptoms, other than optic neuritis, are MS fatigue, and numbness in my legs and feet.  I experienced my first symptom of optic neuritis in July of 2013.  As terrifying as it was, I remember feeling relieved.  I had been seeing different doctors for years, feeling frustrated as I looked for answers to explain why I was feeling the way I was, and then finally, they were beginning to pay attention now that I had optic neuritis.  Fast-forward two years later, and here I am still waiting, but now with patience and acceptance.

I have been lucky to have an amazing support system that surrounds me.  One woman, in particular, changed my path early on in this journey.  She asked me, “What is the gift in MS for you?”  At first, my reaction was ‘What is she thinking…this is such an ignorant question’.  But as she patiently waited for my response, my thinking quickly changed, and I realized, the gift in all of this, is that the possibility of MS has given me reason to put myself first.  This was something that I had never done in the past.  And ultimately, it has given me incredible strength.

From that day forward, I always try my best to remember what MS has given me: strength, focus, awareness of myself, and a passion to live life as it is now.  Of course, there have been many days when I have felt anger and resentful to what I have been handed, but with the ability to change my thinking and remember the positives that MS is giving me, that anger and resentment quickly fades away.  And in return, I grow stronger.